Monday, September 25, 2006

I came home Wednesday for a brief visit and am heading back to DC this evening. By the time I actually post this I hope to be in DC. (I am at 10:23pm)

Sebastian’s foot surgery went well. Thanks to our Lord for His protections and guidance and thanks to you for praying for dear Little One.

In the morning I plan to rush over to the hospital and lift this precious one up into my arms. As the song goes, the moments do seem like hours.

Amid oxygen and feeding and monitoring tubes and wires, I will sing to him and love him and pray for and with him. I will praise our Lord for him. I will watch his numbers on the monitors and I will hear news about him.

When I left him Wednesday, he was once again lying on the table at the same hospital where he had his surgery. His plaster casts had been sawed off and new ones were being made. This time he cried. He cried a lot. It seems good and bad to see him cry. Good in that he no longer likes being “accustomed” to such treatment. Bad in that, who likes to see a tiny one in such a situation?

Please continue to pray for his sucking and breathing and swallowing. Today Liz and I were at lunch and saw a tiny baby so effortlessly suck and breathe and swallow milk from a bottle. Pray for Sebastian's oxygen levels and his lungs to all be perfect. Pray for our Lord’s continuing healing touch upon every aspect of dear Sebastian’s being. And thank Him, thank Him, thank Him!

They cried to You and were saved; in You they trusted and were not disappointed.

Friday, September 22, 2006

Please be praying for Little Sebastian this morning (10 in DC) as he is in the OR having surgery on his foot. Please pray our Almighty God will sustain him and give the doctors His skill and wisdom. Pray that every aspect will be perfect and successful and that there will be no complications, that he will be kept safe by our mighty Lord from Satan and danger, physical emotional and spiritual harm.

They cried to You and were saved; in You they trusted and were not disappointed.

Saturday, September 16, 2006

Those who know Your name will trust in You, for You, Lord, have never forsaken those who seek You. Psalm 9:10

I am sorry I have not posted in so long and will try to post at least each weekend. Much has been happening and time just seems to fly!

Tuesday Sebastian was transported to another hospital for his milk scan and a swallow test. They wanted to be sure fluid was not aspirating into his lungs and they wanted to determine if he has reflux. It was so incredible to watch this tiny Little One on a huge hospital bed with a huge machine hovering over him for an hour, to leave that area for two hours and return for the swallow test which involved much of the same for him. He did not cry. Again he seems so used to large machines, bright lights and strange people. After 6 hours we returned to the hospital where he has been since leaving Hopkins. We do not have the test results yet.

On Thursday he was once again transported to another hospital to have his plaster leg casts removed and replaced once more and to have a hip x-ray.

I left Wednesday for a brief visit to NC and returned this afternoon and went straight to the hospital. He woke up shortly after my arrival. I held him close and we just gazed into each others eyes as I whispered sweet nothings to this little gift from the Lord.

The original 4-6 week dismissal date projection is now at 1-3 weeks. He still has a feeding tube. Taylor is at the hospital right (910pm) now trying for the second time to get him to nurse. His feedings have been through the tube in his nose. They lowered the percent of oxygen today and we pray he will tolerate these changes. He has gained weight and now is over 7 pounds. He has fat cheeks!

Thank you for joining us as we continue to praise our most merciful and loving God for His miracle of Sebastian and pray His almighty and omnipotent hand will to continue to bring Little One to the excellent state of health our hearts desire.

They cried to You and were saved, in You they trusted and were not disappointed.

Tuesday, September 05, 2006

September 5, 2006
945pm

I arrived in DC a week ago tonight after not having seen Little One for two weeks and I plan to leave once again tomorrow and to return again Sunday. During this visit I have spent hours each day in the nursery holding him and singing to him and praying with him and lowly playing Christian lullaby music we played for him in the NICU. Sometimes he sleeps, sometimes he just looks deeply in my eyes, rarely he cries. But sometimes he smiles.

Sebastian is now six weeks old. The miracle of Sebastian is continually a part of me. I remain humbled and awed by God’s loving and merciful hand in Little One’s life.

Please continue to praise our Lord for him. Please pray doctors, nurses and others will all have God’s wisdom and vision in all areas of his care. He has plaster casts all the way from his toes to his hips. Tomorrow the plan is to saw these casts off and replace them with new ones. They are trying a special wedge bed today which keeps him at an angle to help his breathing rate which seems to often go to above 100 breaths per minute. Tomorrow they may also test him to see if he is having reflux problems. They are also trying to decide if splints or taping is best for his hands. He has been on antibiotics for suspected pneumonia and tomorrow they plan to x-ray for signs of improvement. He drinks about one ounce from a bottle and the rest is tube feeding.

Friday will be Sebastian’s actual 40 week mark, the time most consider babies to be full term. Some have said great strides take place at that point.

I am heading to sleep soon so I can get up and drive the forty minute drive to where Little One sleeps in the hospital. The verse above his bed reads….The Lord is with you, He is mighty to save, He takes great delight in you, He quiets you with His love, He rejoices over you with singing.

What a wonderful thought to fill our minds as we go to sleep……..

They cried to You and were saved, in You they trusted and were not disappointed.